Consent for Genetic Testing: Challenges with the informed component
What can genetic testing tell us? Do we learn different information from clinical testing vs. direct to consumer testing? Do we know what happens to our information? What are the risks and benefits?
Not all genetic testing is the same and not everyone can benefit. There are risks associated with genetic testing and there are benefits but informed consent remains a challenge. Moreover, our underlying beliefs about what our genes are and what genetic information can tell us, further complicates testing.
In this presentation, the speaker discussed different types of testing, the challenges with consent for testing, and who benefits from testing.
Bonnie LeRoy, MS, CGC, Professor Emerita of Genetics, Cell Biology and Development in the College of Biological Sciences at the University of Minnesota | Bonnie received her MS in Human Genetics from Sarah Lawrence College in New York and she served as the Director of the Graduate Program of Study in Genetic Counseling at the University of Minnesota from 1989 to 2019. Bonnie’s teaching and research interests involved the preparation of genetic counseling professionals and the ethical, legal and professional challenges inherent in genetic counseling practice.